Charity Tuesday: Cystic Fibrosis Foundation

 

Cystic Fibrosis Foundation

Hey hey! I’m trying a new thing out today! We’re going to call it Charity Tuesday! Each Tuesday I’m going to spotlight a nonprofit and you’re going to read it about it. I hope! These are going to be short, fairly fun posts. Feel free to chime in suggestions down below in the comments!

My heart is in the humanities, my degree is in Nonprofit Management – let’s help organizations make the world a better place!

First up is a nonprofit near and dear to my heart: Cystic Fibrosis Foundation. Headquarters in Bethesda, Maryland. Offices nationwide.

cff

What is Cystic Fibrosis?

Cystic Fibrosis (CF) is a disease passed down through families that causes thick, sticky mucus to build up in the lungs, digestive tract, and other areas of the body. It is one of the most common chronic lung diseases in children and young adults. It is a life-threatening disorder.

There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe.

Mission:

“The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.”

Latest Achievement:

The Cystic Fibrosis Foundation announced today the results of two 24-week clinical trails. Overwhelmingly positive is the fact that nearly 50% of all CF patients will benefit from this combination therapy! That’s awesome!! A drug patent is planned to be filed later this year so people can start using this therapy come 2015.

Why what they do is important:

Although today’s achievement is incredible the average lifespan is 37.5 – way too young. Tremendous progress has been made but there’s obviously more ground to cover. I kicked off Charity Tuesday with CFF for two more reasons – we give and we have a personal connection.

Last summer I had the opportunity to volunteer with the Saint Louis chapter. I was able to see how passionate this office was, help put on events, and meet the families. My first 50k was with them and we’re at it again this year. We got involved because, in 2012, my husband lost one of his best friends to Cystic Fibrosis – 23 years young.

How you can help:

Volunteer: There are chapters around the country that host walk, cycle, and hike events as well as annual galas, golf tournaments, and so much more! There really is something for everyone! Find your closest chapter HERE.

Advocate: If you are interested in helping the Foundation keep CF on the top of the political, industry, and research agendas you can get involved HERE.

Donate: If this is your “thing” or you’d like to donate to help me get across the finish line I would be honored. Click here to do just that!

 

As always – thanks for the reason to blog and all the support!

If you have a nonprofit you’d like to me to spotlight shoot me an email: thesaltypretzelblog@gmail.com

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